The purpose of this qualitative study is to examine the adaptational lived experiences of parenting a child with Cerebral Palsy or other mobility issues from a dual parental perspective living in an urban metropolitan city in California. The study will use a purposive sample of 16 parents (who have children between the ages of 5 to 15) who will be completing semi-structured interviews utilizing video platforms. The Transformation Clinical Model will be used to guide this study as the theoretical framework to identify joys, challenges, and expectations of raising a disabled child. Research findings from this phenomenological study may be used to increase awareness in the Cerebral Palsy community, increase empathy and understanding of parental needs, and potentially improve access to resources that are needed by parents to enhance their quality of life.
Who is eligible?
- Parents who have a child that has been a client receiving services from United Cerebral Palsy of the Golden Gate from six to 12 months.
- Parents who have a child between the ages of 5 to 15 who has Cerebral Palsy or other mobility issues.
- Speaks fluent English
- Must be married and living in the same household (8 mothers & 8 fathers needed)
What will I need to do?
Study participants will complete a consent form once they are interested in participating and then will complete an interview via a video conferencing platform or by phone interview lasting approximately 30-60 minutes.
Will I be compensated?
Unfortunately no.
Why is this research so important?
Participants will be contributing to help increase awareness of the disability, increase awareness within the community, increase empathy and understanding of parental needs, and potentially improve access to resources that are needed by parents to enhance their quality of life.
If interested, please contact the student researcher below for more information
Email or call Ellena Arden if interested in participating
For more information: ellena.arden@waldenu.edu or 209-992-6822
Supervising Chair to the research study: Dr. Edoardo Naggiar